I don't often bother to contact my local elected officials. The few times I have done so in the past got me responses that either completely ignored my issue, or got it backwards and thanked me for supporting the vote I was complaining about.
But today I got interested in obtaining genetic testing. I had thought about it for several years, so it wasn't exactly an impulsive decision. My delay had been the cost a few years ago ($1,000) and limited results offerred.
But when I drilled deeply into one of the provider's websites (and found the cost of $99 and the list of results very lengthy and detailed), I decided to purchase this genome test. Imagine my surprise when I was informed by the website that Maryland is the ONLY State that completely prohibits such "direct-to-consumer" transactions (New York State has a partial ban).
I decided to complain. From what little I could find out about the original regulation, it was aimed at preventing people from being suckered by fly-by-night scammers and those who might sell your genetic information to insurance companies and employers. But the professional companies doing this now seem to protect you from that.
And even if that wasn't true, it doesn't matter to me anymore. I'm retired and my federal health insurance has worked like ObamaCare for 30 years and it is WONDERFUL! I can switch insurance companies every year (I don't) and pre-existing conditions don't matter.
But back to genome (genetic) testing... Alone, Maryland will not allow me to just send a spit sample to a genome testing company and get results. So I looked up all my elected representatives. I emailed them all demanding they allow me the RIGHT to get my genetic results directly from a qualified lab the same way my fellow-citizens in OTHER States can.
I bet all the responses from the politicians are vague and promise agreement even when they say they support the law I am complaining about.
But I'm still glad I spent a few hours contacting them. Sure made ME feel better.
1 comment:
I know that you're complaining about the principle of the thing, but presumably in practice, all you'd need to do is use a friend/relative's address in another state - right?
Megan
Sydney, Australia
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